the advocacy monitor

independent living policy for wonks and wonkettes

Personal Perspective on CILs Post-Ferguson: Getting Back to Our Roots

By Derek Wetherell, Community Organizer, Paraquad, St. Louis, MO

Derek WetherellRecently in my home town, St. Louis Missouri, there has been an uprising by people living in our black and brown communities, sparking a national debate about race in our country. We are now having an unprecedented discussion about police brutality and police utilization of military grade weapons. I’m very grateful that I’ve been able, through my work at Paraquad, grassroots community organizations, and the leaders who we support, to be part of this national dialogue. I’ve recognized the wonderful work that we are doing at Paraquad, using the community advocacy model, as well as areas we can, as a national movement, improve.

I’ll start with the positive. We at Paraquad use a model of community advocacy – or organizing – that is true to IL values and opens us up to work on a number of issues that we wouldn’t have focused on before. Over a year ago we reorganized the way we engage people in advocacy and decided to put the power back in the hands of community members who come to our CIL. Instead of bringing people to us to do defined advocacy, we came to them and they led the charge, set the agenda, and organized initiatives that most impacted them.

So far, we’ve grown 8 dynamic and powerful community organizations built on pursuing disability rights in their area. We facilitate the development of community leaders who head these community organizations. We support and grow new leaders through our own leadership workshops. Instead of dictating to folks “these are your issues,” we partner with community members. We ask them to partner with us on matters of concern that they themselves have identified. This powerful shift has expanded the effectiveness of our local movement. It has also pushed us as an organization to work in new local issue areas.

We are supporting community leaders and their groups in doing disability work, but also gender and race-based work. This includes, as mentioned above, work around Ferguson and police misconduct. For instance, we’ve had a number of community leaders speak at St. Louis County Council meetings, turn out other community members, and talk to city alderpersons about civilian review boards. They’ve talked to the police about more inclusive Crisis Intervention Team trainings – pushing for inclusion of disability information and awareness. Doing more intersectional work makes sense on the heels of major wins for people with disabilities to be in our communities. Doing this work around other forms of oppression is a natural extension of our ‘disability work’ – as people with disabilities are they, themselves, a diverse group. There is more opportunity here.  [Read more...]

An Update from the NCIL Violence and Abuse Task Force

By Julie Espinoza – REACH of Plano Center for Independent Living

As we advocate ratification of the CRPD, the Convention on the Rights of Persons with Disabilities, it is important to include what the CRPD would mean for people with disabilities internationally in the areas of abuse and neglect. The absence of rights and the act of hiding any population in segregated facilities increases abuse, violence, and trafficking. The CRPD goes beyond ensuring the world treats its citizens equally – it prevents the atrocities that follow quietly when one group is denied equality.

At the Disability Rights International website, articles emphasize over and over how violence is linked to power and inequality. Some of the stories are heartbreaking. If people with disabilities have rights, then money can be used to keep them with their families or in their own homes. Institutions can decrease in existence. It’s a vicious chain and you can break it by voicing your outrage that the CRPD has to be argued and fought for after 25 years of the ADA working so well here.

The perfect tie-in is to plan seriously what you are going to do for the International Day of Persons with Disabilities on December 3, 2014. If we do not celebrate our successes and our worth, people quickly forget that we are important.

We, people with disabilities, must constantly remind society that we are people first and have inherent worth and important perspectives to contribute. We know that history repeats. We all lose ground as equal citizens when any group is unrecognized. Violence and abuse gain a stronger sanctioned foothold.

Take a moment to read some ideas for what you and / or your agency can do to promote the International Day of Persons with Disabilities and strike against violence against people with disabilities by advocating ratification of the CRPD. One person can draw attention. Be creative!

Bullying of Students with Disabilities Addressed in Guidance to America’s Schools

Source: U.S. Department of Education

As part of National Bullying Prevention Awareness Month, the U.S. Education Department’s Office for Civil Rights (OCR) today issued guidance to schools (PDF) reminding them that bullying is wrong and must not be tolerated—including against America’s 6.5 million students with disabilities.

The Department issued guidance in the form of a letter to educators detailing public schools’ responsibilities under Section 504 of the Rehabilitation Act and Title II of Americans with Disabilities Act regarding the bullying of students with disabilities. If a student with a disability is being bullied, federal law requires schools to take immediate and appropriate action to investigate the issue and, as necessary, take steps to stop the bullying and prevent it from recurring.

“While there is broad consensus that bullying cannot be tolerated, the sad reality is that bullying persists in our schools today, especially for students with disabilities,” said Catherine E. Lhamon, Assistant Secretary for Civil Rights. “Basic decency and respect demand that our schools ensure that all their students learn in a safe environment. I look forward to continuing our work with schools to address and reduce incidents of bullying so that no student is limited in his or her ability to participate in and benefit from all that our educational programs have to offer.”

Since 2009, OCR has received more than 2,000 complaints regarding the bullying of students with disabilities in the nation’s public elementary and secondary schools. Read more at the Department of Education’s website.

Practical Measures: Telling Your Story through Outcome Measures

CIL-NET Presents… A National Teleconference & Webinar

IL-NET Logo - CIL-NET + SILC-NETMeasuring your CIL’s outcomes is an excellent way to gather real data on the impact your work has in the lives of your consumers and other people with disabilities in your community. And once you’ve gathered that information, you can use it to communicate your success to funders, legislators, and other stakeholders. It’s also an outstanding tool to highlight programs that need improvement – it can even tell you what changes to make.

Join us on November 12th to learn how to get started, the resources that are out there to help you, and what to expect along the way.

Registration Fee: $75.00. Fee is per site and does not apply per participant; registrants are encouraged to gather as many individuals as desired to participate by telephone or webcast.

Target Audience

  • CIL executive directors, program managers, and other staff and board members addressing Center outcomes and measurement; may also be of benefit to SILC staff and council members.  [Read more...]

Notice of Settlement of Class Action Law Suit: Brooklyn Center for Independence of the Disabled v. City of New York

Docket No. 11-CV-6690-JMF

United States District Court
Southern District of New York

ATTENTION: All people with disabilities who are within the City of New York and the jurisdiction served by the City’s emergency preparedness programs and services. This notice concerns a settlement that may affect your rights. Please read it carefully.


This notice is to inform you of the settlement regarding a remedy in a class action lawsuit, Brooklyn Center for Independence of the Disabled v. City of New York, No. 11-cv-6690-JMF (S.D.N.Y.) brought on behalf of people with disabilities who are within the City of New York and the jurisdiction served by the City’s emergency preparedness programs and services. In November 2013, the Court found the City liable for failing to provide meaningful access to people with disabilities to its emergency preparedness programs and services. A copy of the Court’s November 7, 2013 Opinion and Order can be found at,, and

The parties have reached a settlement regarding a remedial plan to improve the City’s emergency preparedness program. The City has agreed to begin implementing the terms of the settlement, which remains subject to modification by the Court after considering objections, if any, by class members. As set forth below, you have the right to submit to the Court, in writing, any objection you may have to the settlement.  Following the close of the objection period, the Court will hold a public hearing to consider whether the settlement is fair, reasonable, and adequate. If the Court determines that it is, you and all other class members will be bound by the terms of the settlement.


As part of the settlement, a complete version of which can be found at,, and, the City will be taking a number of steps to address the needs of people with disabilities in its emergency plans:

Disability and Access and Functional Needs (DAFN) Coordinator and Community Panel

The City will hire a Disability and Access and Functional Needs (DAFN) Coordinator, who will be the lead City employee responsible for seeing that the City’s emergency plans meet the needs of people with disabilities and comply with state and federal law. The City will also create DAFN Coordinator positions at key City agencies that are involved in emergency response.

A Disability Community Advisory Panel will be established so that the City can gather expertise and feedback from the disability community regarding the City’s current and future emergency plans. The City will hold an annual forum for the public on issues relating to emergency planning for people with disabilities.


By August 2017, the City will create a Post-Emergency Canvassing Operation (PECO) plan designed to rapidly survey households after a disaster to assess and identify the critical needs of people with disabilities. During a canvassing operation, canvassers will go door-to-door carrying a mobile survey tool to input resource requests and refer those requests to appropriate partners for resolution.. Resource requests include but are not limited to food, water, electricity, medical care, and durable medical equipment.


By August 2017, the City will estimate the demand for City-provided accessible evacuation and transportation services and will enter into agreements and work collaboratively with appropriate transportation providers to develop the City’s accessible transportation plans for pre-storm or forewarned evacuations. The City will also develop plans for the effective deployment of accessible vehicles during notice and no-notice events. The City will develop plans to relocate people with disabilities in frozen zones who have not evacuated and work with partner agencies to resume accessible transportation services as soon as possible after an emergency.


By the end of September 2017, the City will have a minimum of 60 accessible emergency shelters (separate from the 8 Special Medical Needs Facilities currently maintained by the City).  The minimum of 60 accessible facilities will be distributed throughout all five boroughs and will have the capacity to shelter approximately 120,000 people with disabilities in the event of an emergency.

Every accessible shelter will have accessible signage, provide for backup power, refrigeration, power strips, and a way-finding kit to assist people with disabilities in utilizing the shelter. The City’s reserve supplies will include sufficient numbers of raised toilet seats, accessible cots, mobility aids (canes, crutches, manual wheelchairs), basic medical suppliers, and extension cords. CART or ASL interpretation services will be provided at every accessible facility.

High Rise Evacuation

A NYC/ADA High Rise Building Evacuation Task Force will be assembled to address the gaps in the City’s planning for the high rise evacuation of people with disabilities from high rise buildings. The Task Force will consist of a committee of representatives from City agencies, subject matter experts, and disability community representatives. At the end of one year, the Task Force will develop recommendations to address high rise evacuation for people with disabilities, which will be implemented as part of a three year Work Plan.

The City will also upgrade the 311 system to include a new natural language IVR system where 311 callers seeking evacuation assistance can speak a combination of designated words to be connected to a dedicated pool of trained specialists who will be able to provide information about high rise evacuation.

Attorneys’ Fees

Plaintiffs are represented by Disability Rights Advocates and Sheppard Mullin Richter & Hampton LLP (“Class Counsel”). Class Counsel is still negotiating with the City regarding the amount of attorneys’ fees and costs that the City will pay them for their work on this case. If such negotiations do not result in a mutually agreeable amount, Class Counsel will apply to the District Court for legal fees and costs of the litigation of no more than $6.2 million. The actual amounts awarded will be determined by the District Court to ensure that the amount of attorneys’ fees and costs awarded are reasonable.

The settlement does not provide for any monetary relief to be paid to any plaintiffs or members of the class.


You have the right to object to the terms of this settlement by filing a written, signed objection with the Court no later than December 29, 2014. You also have the right to appear at a hearing, which will address the fairness of the settlement agreement to the class. That hearing is scheduled for February 13, 2015 at 10:00 a.m. in the Courtroom of the Honorable Jesse M. Furman, United States District Judge, Courtroom 1105 of the Thurgood Marshall United States Courthouse, 40 Centre Street, New York, NY 10007. The time and date of the fairness hearing are subject to change by the Court through written order to be docketed publicly on ECF.

Please note that, while the Court will read and consider your written objection whether or not you are present at the fairness hearing, if you wish to speak at the hearing, you must include a sentence in your written objection informing the Court that you wish to speak at the hearing. Written objections must be filed with the Clerk of the United States District Court for the Southern District of New York at the following address:

Clerk of the United States District Court
Southern District of New York
Thurgood Marshall United States Courthouse
40 Centre Street
New York, NY 10007
Specifying: Brooklyn Center for Independence of the Disabled v. City of New York, Civil Action No. 11-cv-6690-JMF

Objections may be filed in person or may be mailed to the Court at the above address but must be actually received by the Court by the deadline set forth above to be considered.  Copies of objections must also be mailed or delivered to counsel for the parties:

Christine Chuang
Disability Rights Advocates
40 Worth Street, 10th Floor
New York, NY 10013
(Counsel for Named Plaintiffs & Settlement Class)

Mark Toews
Senior Counsel
General Litigation Division
New York City Law Department
100 Church Street, Rm. 2-106
New York, NY 10007
Tel: (212) 356-0871
(Counsel for Defendants)

Follow NCIL on Twitter

We’ve got a new presence on social media: the official NCIL Twitter account. Follow us at @NCILAdvocacy!

California’s Youth Organizing (YO!) Disabled and Proud Celebrates 4th Annual Disability History Week

The village above is built from names of women who have and are shaping the Disability Rights Movement! Celebrate Disability History by sharing more names of women, and be a part of building a larger village of recognition of women's leadership by visiting

The village above is built from names of women who have and are shaping the Disability Rights Movement! Celebrate Disability History by sharing more names of women, and be a part of building a larger village of recognition of women’s leadership by visiting

Source: Youth Organizing (YO!) Disabled and Proud

California’s Youth Organizing (YO!) Disabled and Proud celebrates its 4th annual Disability History week, October 13 – 17, 2014. This year’s disability history theme is centered around the contributions that hundreds of women with disabilities have made to our movement, “It Takes Women to Raise a Movement.”

Each year we develop a new poster that highlights our disability history theme. Our poster this year includes names of the many women with disabilities who have contributed to our movement in a variety of ways, but we know that it doesn’t include everyone and that’s where you come in. We invite you to tell us who we’re missing by coming to our site and emailing us. You are also welcome to share your favorite disability history story with us, tweet, Facebook and Instagram with our hashtag #DHW2014 and last, but not least support YO! Disabled and Proud by ordering a poster. Find out more at the YO! website.

An Update from the NCIL Women’s Caucus: When Women Succeed, America Succeeds – Needs Must Include Concerns of Women with Disabilities

The NCIL Women’s Caucus determined that the 2014 women’s economic agenda and President Obama’s plan to expand opportunity for every American needs to include more clearly issues and concerns of women living with disabilities. For that reason, it is important that women with disabilities tell Congress about the important issues they would like to see highlighted / enhanced / added. During the Pre-Conference at NCIL’s 2014 Annual Conference on Independent Living, many women and some men shared their ideas on:

  • Womens Caucus Logo: Power with a CauseAccess to education for women living with disabilities
  • Access to education in science, technology, engineering, and mathematics for future employment as a women living with disabilities
  • Access to child care as a woman living with disabilities
  • Access to employment as a woman living with disabilities

All of these statements are being edited, captioned, and shared for review with the Women’s Caucus. Next, they will be shared with Congress as our statement from the NCIL Women’s Caucus!

The Women’s Caucus extends our heartfelt appreciation to everyone who contributed to this taping!

Remember, the NCIL Women’s Caucus meets monthly to provide mentoring opportunities for women’s leadership in NCIL and the IL Movement, as well as to address issues / mitigate barriers specific to women living with disabilities. For more information, please contact NCIL Women’s Caucus Co-Chairwomen Mary Margaret Moore ( or Sarah Launderville ( to become a member of the Caucus.

New ACA Employer Mandate Survey Activated: Call for Responses Goes Out Nationwide

Source: National Association for Homecare & Hospice

Take the survey

The employer mandate responsibilities In the Affordable Care Act are scheduled to take effect on January 1, 2015. Employers of 100 or more full-time equivalent employees (FTEs) will be required to either offer a qualified health plan to all their full-time employees or face a potential financial penalty. For purposes of this law, a “full-time employee” is an individual who works 30 hours or more per week. The Internal Revenue Service (IRS) has determined that the requirement will be applied on a monthly basis using 130 hours per month as the standard for full-time.

For employers of 50-99 FTEs, the mandate takes effect on January 1, 2016.

The employer mandate involves a fairly complex formula for determining whether and how it applies to businesses. Each business should be individually evaluated to determine if and how the requirements apply to it. The cost of a qualified health insurance can be quite high. Likewise, the penalty cost can be as well, with the penalties set at $2000 each for all full-time employee (after the first 30 are exempted) when the employer does not offer a qualified plan so long as one of the full-time employees qualifies for a receive a federal subsidy. The penalty is set at $3000 for each full-time employee that qualifies for a federal subsidy through the insurance exchange when the employer does offer a qualified health insurance.  [Read more...]

What Will You Do on November 4th?

by Kathy Hoell, Chair, NCIL Voting Rights Task Force

A lot is at stake in this election. As leaders in the Independent Living Movement, you of course will vote! But just voting is not enough. As leaders, you have a responsibility to engage your consumers, friends, and family members in the election. As an employee of a Center for Independent Living, you can develop and conduct nonpartisan voter education activities. These can include registering people to vote, educating people about our concerns and issues, or conducting phone banks. It is predicted that this off-year election will have a low turnout compared to a presidential election. Many people with disabilities who voted in 2012 will not vote this year unless they are asked to. Paraquad, Inc. the CIL of St. Louis, MO has done phone banking for years. It is the most-effective tool for increasing the disability vote.

An effective phone bank is made up of two steps. The first is to call and speak to all consumers, friends, and allies (leaving a voicemail message is not effective). When you reach the person, ask if they plan to vote on November 4th. Make sure they know where to vote and if they know what time of the day they plan on voting. The second step begins the night before and throughout Election Day: call everyone who said they would vote and remind them.

Another option for advocates is to volunteer for the candidate of your choice. Volunteering in an election campaign is an important way to build a relationship with those elected officials whose decisions affect our lives. It may impact their decisions in the future if they know people with disabilities. Some ways in which you can effectively volunteer are: going to candidate events and cheering the candidate on, putting a bumper sticker on your wheelchair or car if you have one, putting a yard sign on your lawn or in your window, working at a candidate phone bank, or canvassing for a candidate door-to-door. Your candidate will probably have many other opportunities – ask how you can help.

Some of us take Election Day off and volunteer on that day when candidates need the greatest number of volunteers. Being near a polling place and encouraging people to vote for your candidate, or holding up your candidate’s signs on busy street corners are just a few of the many jobs campaigns have for volunteers on election day. Remember – you cannot conduct partisan activities while working, but as an American citizen and a leader, you can volunteer for the candidates of your choice.

Lastly, you should be thinking about the next election and either running for office yourself or encouraging a colleague in your community to run for office.