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Independent Living News & Policy from the National Council on Independent Living

A Documentary About Resisting Isolation and Living with Multiple Chemical Sensitivity (MCS)

For the past 3+ years, filmmaker Drew Xanthopoulos has been making a feature documentary about resisting isolation and living with Multiple Chemical Sensitivity (MCS) and invisible disabilities. He’s driven and flown tens of thousands of miles to meet families whose lives have been reshaped by MCS and also documented well-known activist Susan Molloy attending the 2014 NCIL conference in Washington DC. 

We have just launched a crowdfunding campaign to help complete the film and need the help of communities who want to raise empathy and awareness for experiences that are usually dismissed.

You can watch the unforgettable teaser and pledge support at bit.ly/SensitivesDoc.

The Sensitives - bit.ly/SensitivesDoc Kickstarter - Help us bring these stories to the world - (Image: A man sits at a small table in a room covered in metallic foil

Multiple Chemical Sensitivity (MCS), also known as Environmental Illness (EI), is poorly understood. People develop severe migraines, rashes, fatigue, and loss of motor and speech skills when exposed to ordinary things like cleaning products, pesticides, and sometimes electronic and wireless technologies.

As with PTSD in the 1960s, viewed by the medical profession and much of society as a lapse of character in malingering Vietnam vets, sufferers of MCS find themselves isolated from family and friends, labeled, and treated with suspicion. The Sensitives explores an illness that tests families’ bonds like few others. Without an agreed-upon medical explanation the sick and their caretakers must figure out how to get better on their own.

The Sensitives intends to get past the masks and foil-lined rooms and meet the artists, social workers, and grandparents inside. In other words, the ordinary people driven to the fringes because of a very misunderstood condition.

Comments

  1. Wendy Ginsberg says

    Looking to connect with my old friend Susan Molloy..
    I saw you the last time at my wedding in 1980.
    My son has environment sensitivities.
    Hope to connect with you.
    Wendy

    • Marzinete Pilch says

      Hi Wendy, my name is Marzinete Pilch, I am social worker student at Marywood University in Pennsylvania. I am doing a project about social justice for people with MCS and EHS, and I am going to interview Susan Molloy on Sunday April 11, 2021, I will send a message that you are looking for her OK. If you can, send email to me, with your phone number.

      • Helene Smith says

        hi Mazinete!… i realize that you posted this back in April, but as someone that lives with MCS, i would SO like to help change the world so that people like myself can GO places and LIVE places (and not end up homeless)! we MOST of all need to educate people about the fact that this is a very real physical disease (for some like me, post-viral, JUST like COVID long-haulers)… i would like to be able to travel again in my lifetime. how is fragrance everywhere more important than people?… so many are homeless or have taken their lives. please contact me, if you made any progress or if i can help in any way! thank you for what you are doing! it means SO much to so many!