the advocacy monitor

Independent Living News & Policy from the National Council on Independent Living

Organizers Forum: Sexual Assault, Disability, and #MeToo

  • Tuesday, February 20, 2018
  • 1:00-2:00 p.m. Eastern
  • RSVP

In January, National Council on Disability released a report, “Not on the Radar: Sexual Assault of College Students with Disabilities,” which seeks to better understand how colleges respond to, prevent, and support survivors of sexual assault who have disabilities. Speakers will provide an overview of the report, the report recommendations, and discuss how it connects to the national #MeToo movement, and next steps.

[Read more…]

An Update from the NCIL Employment / Social Security Subcommittee

Sam Liss and James Turner, Co-Chairs

The NCIL Employment / Social Security Subcommittee is encouraged by the increasing participation of new and veteran members and is excited about real movement of its legislative policy initiatives. The Subcommittee also appreciates hosting several constructive discussions relevant to its charge.

Our efforts to accelerate interest in our policy proposals, both of which would eliminate key barriers to employment for people with disabilities who reach retirement age, has received notice from the Congressional committees of jurisdiction. An initial meeting with senior staffers of the House Social Security Subcommittee (of Ways and Means) led to a request for data culling and analysis from the chief Social Security Administration actuary. The actuary agreed to the request and suggested that the task will be completed within one month. Upon our receipt of the data and of the results of fiscal analysis, we will return to the House Social Security Subcommittee and present them with cost rationale for moving forward with legislation.  Such legislation, which has achieved apparent bipartisan support thus far, would remove employment restrictions for Childhood Disability Beneficiaries (CDBs) upon reaching retirement age. CDBs are the only population with such restrictions.  [Read more…]

NIDILRR Seeks Peer Reviewers for Upcoming Competitions

The National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR) is seeking expert peer reviewers for several upcoming competitions. Expertise in all areas of disability and rehabilitation is welcome. NIDILRR uses teleconferences to conduct all review meetings, so reviewers do not have to travel to participate. Interested individuals who would like to be considered for peer reviewers may send CV and contact information to

Participants Needed: National Survey on Health Reform and Disability

The Collaborative on Health Reform and Independent Living (CHRIL), which is funded by the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR), is looking for adults with disabilities to complete an online survey about getting and using health insurance and health care services. Whether you have private insurance, insurance from an employer, Medicaid, Medicare or no insurance please complete the survey. NIDILRR wants to know how the Affordable Care Act (ACA) may be affecting your life.

Adults ages 18 to 62 with any type of disability are encouraged to participate. The survey should take about 20 minutes to complete and your responses are anonymous.

[Read more…]

Trump Budget Proposal Cuts Independent Living and Other Vital Programs: Contact the Appropriations Committees!

Last week, the President released his budget proposal for FY 2019 (PDF). Unsurprisingly, the budget proposes steep cuts to the programs people with disabilities rely on, including the Independent Living Program! While it’s important to note that this is only a proposal, and Congress will likely not include many of these proposals in their appropriations bills, it does confirm for us the areas we’ll likely have to continue fighting for. We need to make sure our voices are heard NOW, before Congress begins the FY 2019 appropriations process!

NCIL logo - National Council on Independent LivingFirst and foremost, the budget proposes cutting the Independent Living line item by $5 million, to a total of $96 million.

  • Note: While the HHS budget document presents this as a $4 million cut, this proposal was drafted before the recent budget agreement. Congress has yet to enact a full-year appropriations bill for 2018, so based on the most recently enacted spending levels (FY 2017), this budget proposes a $5 million cut.

NCIL and the Independent Living community have long been urging Congress for a funding increase, because as we all know, the program has been remarkably underfunded for years! With the addition of the fifth core services, Centers for Independent Living (CILs) around the country are working harder than ever with insufficient funding. We need to ensure that this proposal does not make it into Congressional spending bills.  [Read more…]

Please Share Your Experiences with the New 704 / Program Performance Reports by Friday, February 23!

The NCIL Rehabilitation Act / Independent Living Funding Subcommittee is looking for input from CILs and SILCs on their experiences with the new 704 / Program Performance Reports (PPR) and the ACL Reporting system.

To participate, complete the survey online. The survey should take approximately 5-10 minutes.

The deadline to complete the survey has been extended to Friday, February 23, 2018.

The survey is also available in Word and plain text and can be emailed back to

NCIL Condemns House Passage of H.R. 620

The National Council on Independent Living (NCIL) strongly condemns the passage of H.R. 620 by the House of Representatives. Despite fierce opposition from the disability community, the House passed a bill that would roll back our right to access and participate in our communities.

The bill was passed by 213 Republicans and 12 Democrats. We are outraged at these Representatives, who deliberately disregarded the objections of their disabled constituents – and over 500 disability organizations – to pass this discriminatory bill.

NCIL logo - National Council on Independent LivingH.R. 620 is a cruel and misguided bill that would weaken the protections afforded us under the Americans with Disabilities Act and create additional obstacles to seeing our rights enforced. Moreover, it would not stop fraudulent lawsuits or solve the problem the bill’s supporters are claiming to address. Nearly 28 years after the passage of the ADA, the passage of H.R. 620 is a disgraceful confirmation of these Representatives’ skewed priorities.

NCIL Executive Director Kelly Buckland said, “H.R. 620 is a shameful bill, and its passage is something the disability community won’t soon forget. Businesses that are breaking the law – 28 years after the ADA was passed – are more important to our Representatives than their disabled constituents. If this bill becomes law, businesses that have refused to comply with the ADA will have absolutely no incentive to do so until they receive notice. This is a shameful day for the country.”

President of the NCIL Board of Directors Bruce Darling said, “Our members of Congress are supposed to represent all of their constituents, and they’ve proven that this is not the case. H.R. 620 tells disabled people one thing: you are not welcome in my district. And make no mistake; we will remember this and hold our Representatives accountable.”

NCIL is grateful to the Representatives who opposed and spoke out against H.R. 620, and to the advocates who took action on this bill. We strongly urge the Senate to not to take up this bill.

CIL-NET & SILC-NET Present… A National Teleconference & Webinar: Preventing and Responding to Sexual Violence and Sexual Harassment in CILs

April 25, 2018; 3:00 – 4:30 p.m. Eastern

Register online or by using the printable registration form (PDF)

Sexual violence and sexual harassment in the workplace has been in the spotlight recently and it’s about time. Independent Living advocates know all too well the prevalence of sexual assault and harassment experienced by people with disabilities. As employers and administrators and service providers, Centers for Independent Living (CILs) and Statewide Independent Living Councils (SILCs) have a responsibility to create environments that respond sensitively and safely. Our staff, board, council members, volunteers, and consumers all benefit when sexual violence and sexual harassment is addressed. Policies and procedures within CILs and SILCs should give guidance and structure in order to create responsive facilities, programs, and activities.

IL-NET Logo - CIL-NET + SILC-NETJoin us this April – Sexual Assault Awareness Month – to learn how you can support victims of violence and work to prevent sexual harassment in your organization. Learn the steps for creating an environment where sexual violence and harassment is addressed sensitively and effectively using a trauma informed approach. Sample policies and procedures that offer guidance will be discussed. Our presenters will share their work as sexual assault advocates and discuss these issues specifically within CILs and SILCs. We all have a role to play in creating a culture where sexual violence is addressed and sexual harassment is not tolerated. Don’t miss this crucial presentation.  [Read more…]

H.R. 620 Vote Tomorrow: Keep Up the Pressure!

We only have one day to stop the House from voting to strip our civil rights away! The House will vote on H.R. 620 tomorrow, so we need to take action today! We need everyone to contact their Representative and urge them to vote NO on H.R. 620!

Contact your Representative today!

Call! All Representatives can be reached through the U.S. Capitol Switchboard at (202) 224-3121 or (202) 224-3091 (TTY).

Tweet! Tag your Representative and use the hashtags #HandsOffMyADA and #StopHR620.

You can also:

NCIL logo - National Council on Independent LivingKeep your message simple. Share your personal stories about how the ADA has helped you access to your community. Explain that H.R. 620 will make people wait months, or even years to be able to access our communities; and access delayed is access denied!

We cannot – and will not – let this happen without a fight. Our Representatives need to know that we are watching them, and that we will hold them accountable for their vote. They need to understand that their disabled constituents and the 57 million Americans with disabilities want to participate in their communities just like nondisabled people do – and it’s our right!

The clock is ticking – keep up the pressure!

Key Targets & Phone Numbers

It is important to contact all Representatives, but these are priority targets.  [Read more…]

Save the ADA – H.R. 620 to Be Voted on This Thursday!

The House of Representatives is planning to vote on the Americans with Disabilities Act (ADA) Education and Reform Act (H.R. 620) this Thursday, February 15!

Take Action Now!

Contact your Representative today and urge them to vote NO on H.R. 620. All Representatives can be reached through the U.S. Capitol Switchboard at (202) 224-3121 or (202) 224-3091 (TTY). You can find additional contact information and direct numbers at You can also use Resistbot to turn texts into faxes, mail, or hand-delivered letters, fax your members of Congress (use to find their fax number), or contact your Representative on social media with contact information from Contacting Congress.

NCIL logo - National Council on Independent LivingKeep your message simple. Use the background information below to discuss the dangers of this bill, and share your personal stories about how the ADA provides you greater access to your community! And, let them know that their disabled constituents will be watching how they vote and will hold them accountable!

Note: All Representatives need to hear from us, but we have included a list of particularly important targets below.

Background Information

H.R. 620 would create additional barriers to seeing our rights enforced under the ADA and make it harder to participate in mainstream society. Importantly, H.R. 620 would not solve the problems it claims to address. It would not stop fraudulent lawsuits or demand letters, but it would weaken the civil rights of people with disabilities! Moreover, it would eliminate any reason for businesses to comply with the ADA unless they receive a legal notice first.  [Read more…]