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Independent Living News & Policy from the National Council on Independent Living

Healthcare & Community Living

Action Alert: Ask Your Representative to Support Proposed Bill Protecting People from EVV

Advocates nationwide are working with Representative Diana DeGette (D-CO) to draft a bill that will prohibit the use of global positioning systems (GPS) and biometric data collection in Electronic Visit Verification (EVV). This is the first step in our fight to stop EVV!

The draft bill will first be introduced in the U.S. House of Representatives Energy and Commerce Committee. If your Representative serves on this committee, please call or email them to ask that they co-sponsor Representative DeGette’s proposed bill!

How to contact: All members of Congress can be reached by calling the Capitol Switchboard at (202) 224-3121 or (202) 224-3091 (TTY). You can also find your Members’ contact information at house.gov.

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This April: Help Secure House Energy and Commerce Members As DIA Co-Sponsors!

Thank you for participating in our Women’s History Month campaign to get women in Congress to co-sponsor the Disability Integration Act of 2019 (DIA) – H.R. 555 and S. 117! Thanks to your efforts, we secured six women co-sponsors in the House of Representatives, and one of them is on House Judiciary Committee!

  • Susan Davis (D-CA)
  • Deb Haaland (D-NM)
  • Primilia Jayapal (D-WA)
  • Nita Lowery (D-NY)
  • Nydia Velazquez (D-NY)
  • Jennifer Wexton (D-VA)

Now we need to focus on securing members of the House Committee on Energy and Commerce as DIA co-sponsors before the end of April!

As we embark on the fourth month of 2019 and of the 116th Congress, we need these members to get the DIA moving in Congress over the next few weeks. It is imperative that we connect with these members’ offices every day until we reach our goal.

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NCIL Opposes Gillibrand and Gardner’s Opioid Proposal

Senators Gillibrand (D-NY) and Gardner (R-CO) introduced the John S. McCain Opioid Addiction and Prevention Act (S. 724) earlier this month, and while the text is not available, the press release says it would impose across-the-board, seven-day limits on opioid prescriptions for acute pain nationwide. Amid widespread efforts to combat opioid addiction and overdoses, this bill is yet another example of aggressive reductions in opioid prescribing that would have unintended, but by now predictable, results for people with serious acute, episodic, and chronic pain. As an organization that represents people with disabilities across the country, many who live with such pain, the National Council on Independent Living opposes this bill.

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Action Alert: Honor Women’s History Month by Securing New DIA Cosponsors!

March is Women’s History Month and we are celebrating by honoring all the women in this world with disabilities! Our goal in March is to get all women in Congress – both the House and Senate – to sign on by the end of the month.

Let’s finish Women’s History Month strong! We can use this opportunity to win freedom for millions and get the Disability Integration Act (H.R. 555 / S. 117) passed into law in the 116th Congress!

This may take multiple calls and emails, but together we will get this imperative civil rights legislation passed and FREE OUR PEOPLE.

“Struggle is a never ending process. Freedom is never really won, you earn it and win it in every generation!” – Coretta Scott King

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Action Alert: Honor Women’s History Month by Securing New DIA Cosponsors!

March is Women’s History Month and we are celebrating by honoring all the women in this world with disabilities! Our goal in March is to get all women in Congress – both the House and Senate – to sign on by the end of the month.

Both the House and Senate are currently on recess, which means that your Representative and Senators are back in their home districts the rest of the week. Let’s use this opportunity to win freedom for millions and get the Disability Integration Act (H.R. 555 / S. 117) passed into law in the 116th Congress!

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CIL-NET Presents: A National Learning Collaborative on Business Acumen at Centers for Independent Living

May-December 2019

Are you looking to begin, secure, or grow contracts and funding from health plans and payers, but need help with your business acumen efforts?

CIL-NET is offering a National Learning Collaborative to assist CILs in improving business acumen by contracting with health plans and other health payers to establish income-producing community-based services that enable people with disabilities and significant health issues to live successfully in the community.

Goal of the Collaborative: To increase the Center’s capacity to engage in new business practices, notably contracting with health plans and payers, in order to establish and operate self-sustaining service programs in the community.

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The National Organizing Project Presents: A Teleconference and Webinar – The Art of Negotiation: Closing the Deal

The National Organizing Project Presents: A Teleconference and Webinar

Negotiation is often referred to as an art form because there are many creative, nuanced ways of getting to your end goal: closing the deal.

This webinar / teleconference will highlight some techniques and explore some creative ways of getting at the compromise that allows for a win-win situation.

Target Audience: This presentation is open to all CIL and SILC staff members, directors, board members, and all other interested parties. All are encouraged to attend.

Registration Fee: This presentation is free for NCIL members to attend and $25 for non-members, but we do need you to register prior to the event.

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Action Alert: Honor Women’s History Month by Securing New DIA Cosponsors!

March is Women’s History Month and we are celebrating by honoring all the women in this world with disabilities! Our goal in March is to get all women in Congress – both the House and Senate – to sign on by the end of the month. Let’s win freedom for millions and get the Disability Integration Act (H.R. 555 / S. 117) passed into law in the 116th Congress!

This may take multiple calls and emails, but together we will get this imperative civil rights legislation passed and FREE OUR PEOPLE.

“Struggle is a never ending process. Freedom is never really won, you earn it and win it in every generation!” – Coretta Scott King

[Read more…]

Join Wednesday’s Call-In Day for Money Follows the Person!

Thanks to your ongoing advocacy, Congress passed a short-term Money Follows the Person (MFP) extension (the Medicaid Extenders Act, H.R. 259) into law early this year. On February 25, Congress introduced a new version of the EMPOWER Care Act (H.R. 1342 / S. 548) that would extend the MFP program for five years in both the House and the Senate.

MFP was enacted in 2005 with strong bipartisan support, and is one of the longest running, most successful Medicaid demonstrations. Since it began, 47 states have participated and over 88,000 disabled people have been freed from institutions – and CILs have played a critical role in that. However, MFP expired on September 30, 2016, and the Medicaid Extenders Act provided only three months of funding, so our continued advocacy is needed for a longer-term extension.

The EMPOWER Care Act would extend the MFP program for five years, giving us more time to work toward a permanent solution for MFP. Importantly, now that CILs have been established as a national network required to conduct transition services (as part of the passage of WIOA in 2014), NCIL would like to see a permanent MFP solution that incorporates the CIL network into the bill language. NCIL is committed to that effort, and passing the EMPOWER Care Act into law would serve as a much-needed next step to reaching that goal.

Take Action Now!

  • Participate in Wednesday’s National Call-In Day! Call your Representative and Senators and tell them to support the EMPOWER Care Act and pass it immediately! Call the Capitol Switchboard at (202) 224-3121 or (202) 224-3091 (TTY). Find more information at Wednesday’s Facebook event. RSVP and share widely!
  • Other ways to contact your Members of Congress: You can find your Members’ Twitter handles and other contact information on Contacting Congress. (If you post on social media, use the handle #FundMFP)
  • Continue sharing your stories! See our previous alert for more details about the stories we’re looking for, and share them with us for our advocacy efforts in DC.
  • Share with the press! Arrange press interviews highlighting the stories of folks who were able to move home because of MFP, or individuals who are stuck in institutions and would benefit from MFP’s reauthorization. Sharing our stories is the key to gaining the support of members of Congress AND the public. If you successfully get the press to cover MFP, please send a link of the coverage to lindsay@ncil.org.

Urgent Action Alert: DIA Co-Sponsors Needed!

We need to immediately secure members of the House Energy and Commerce Committee as co-sponsors on the Disability Integration Act – DIA (H.R. 555) in order to achieve movement on this bill in the 116th Congress.

If your Representative sits on the House Energy and Commerce Committee, please reach out to them right away. Tell them, “Please co-sponsor DIA (H.R. 555) today!” Then ask your family, friends, co-workers, and other community members to call and email as well.

This is the committee that will work the DIA in the House. They are in charge of the first part of the process of eventually bringing this bill to a full vote in the House of Representatives.

The House Energy and Commerce Committee has 55 members: 31 Democrats (we need 19 more) and 24 Republicans (we need 23 more).

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