the advocacy monitor

Independent Living News & Policy from the National Council on Independent Living

Healthcare & Community Living

Take Action for MFP on the Olmstead Anniversary!

This Friday, June 22, 2018, is the 19th Anniversary of the Supreme Court’s Olmstead decision cementing the ADA’s integration mandate. To commemorate the day, NCIL is joining other national disability organizations in hosting a National Call-In Day for the EMPOWER Care Act (S. 2227 and H.R. 5306).

NCIL logo - National Council on Independent LivingSince Money Follows the Person (MFP) began in 2005, over 75,000 disabled people have been liberated from institutions, and CILs have played a critical role in that. But MFP expired on September 30, 2016, and states are starting to scale back and end their programs. In fact, last year was the first time the number of people transitioned into the community declined. We need your advocacy to get the House and Senate to pass the EMPOWER Care Act to reauthorize and fund MFP!

Take Action!

Congress must save and fund MFP, and they need to hear from us! Please urge your Senators and Representative to continue the Money Follows the Person program by co-sponsoring the EMPOWER Care Act!

  • Participate in the National Call-In Day! Call your Senators and Representative and urge them to co-sponsor the EMPOWER Care Act! All members of Congress can be reached by calling the Capitol Switchboard at (202) 224-3121 or (202) 224-3091 (TTY). Find more information, including talking points, at the Facebook event. RSVP and share widely!
  • Use Social Media! Post on Facebook and Tweet at your members of Congress. Find your Members’ Twitter handles and other contact information on Contacting Congress. Make sure to use the hashtag #FundMFP in your posts. You can find more information, including sample Tweets, at the Facebook event.
  • Email your members of Congress! Customize a message to your Members of Congress online.
  • Continue sharing your stories with us! See our previous alert for more details about the stories we’re looking for. Our original deadline passed, but we’re still looking for your stories about the importance of community living!

Take Action on the Disability Integration Act Over the Recess!

Members of Congress are back home this week for recess, so it’s the perfect time to meet with them about the Disability Integration Act (DIA)! If your Senators or Representative have still not signed on to the DIA, take action over the recess by urging them to become a cosponsor!

NCIL logo - National Council on Independent LivingThe Disability Integration Act (S. 910 and H.R. 2472) is a critical bill that would reverse the institutional bias and help disabled people stay in our homes and communities. The DIA is the next logical step in our fight for disability rights and the only piece of legislation that will protect our community from institutionalization. We need ALL of our Members of Congress to support the DIA!

We know the disability community has the power to make things happen, and every meeting, email, call, and action counts. Use this recess to educate your Senators and Representative on the DIA and urge them to become a cosponsor! Tell them that living in our own communities and making choices about our lives is our right, and as our elected officials, it’s their responsibility to protect that!

Learn more about the DIA at www.disabilityintegrationact.org.

Final Week: Participants Needed for the National Survey on Health Reform & Disability

The NIDILRR-funded Collaborative on Health Reform and Independent Living (CHRIL) is looking for adults aged 18-62 with disabilities to complete an online survey about getting and using health insurance and health care services – the National Survey on Health Reform & Disability.

Why? We want to know how the Affordable Care Act (ACA) is affecting your life. If you have private insurance, insurance from an employer, Medicaid, Medicare, or no insurance please take the survey.

Who? Adults ages 18 to 62 with any type of disability, chronic health condition or mental illness.

How? The survey should take about 20 minutes to complete and your responses are anonymous.

During the week of May 27th – June 2nd the last of 2 drawings to win a $100 gift card will be held. The online survey is fully accessible for mobile devices and screen readers, but if you prefer to take the survey over the phone or have any questions about participating, please call toll-free 1-855-556-6328 (Voice/TTY) or email healthsurvey@ku.edu. For more information about CHRIL, go to: www.chril.org.

Disability Integration Act Essay Contest for Young Adults

Your essay could win you a trip to Washington, D.C. to meet with Members of Congress about the Disability Integration Act!

2018 Disability Integration Act Essay Guidelines

The Disability Integration Act (DIA) is a bill that introduced by Senator Schumer in the Senate and Representative Sensenbrenner in the House to address the fundamental issue that people who need Long Term Services and Supports can be forced into nursing homes and other institutions in order to receive the assistance they need. This means that people are losing their homes, family and freedom simply because they need assistance with daily living. The legislation (S. 910 / H.R. 2472) would ensure that seniors and people with disabilities are able to receive home and community-based services as an alternative to institutionalization.

NCIL logo - National Council on Independent LivingIn 500 – 2000 words tell us what the Disability Integration Act means to you and how your life will be impacted when the bill passes.

Extended Deadline: Tuesday, June 26, 2018 at 11:59 p.m. Eastern

For any questions, contact essaycontest@ncil.org.

Essay Contest Rules 2018

Eligibility: Young adults between the ages of 13 and 22 years are eligible to participate in this contest. Young adults do not need to be disabled, but must be able to demonstrate how the Disability Integration Act would impact them.  [Read more…]

Disability Integration Act Children’s Art Contest

Your child’s original artwork could win them a trip to Washington, D.C. to meet with Members of Congress about the Disability Integration Act!

2018 Disability Integration Act Artwork Contest Guidelines

The Disability Integration Act (DIA) is a bill that was introduced by Senator Schumer in the Senate and Representative Sensenbrenner in the House to help people with disabilities and older people live at home instead of having to go to a nursing home or other institution. Sometimes people who need extra help with the things they do every day, like getting dressed or eating, are forced to go to a nursing home to get that help instead of living at home. That’s not fair. This bill would make it the law that we would help people in their own homes! You and a grown up can look up the bill on congress.gov by searching the bill numbers: S. 910 and H.R. 2472. You can also learn more at www.disabilityintegrationact.org.

NCIL logo - National Council on Independent LivingIn one piece of artwork, show us what the Disability Integration Act means to you and how your life will be impacted when the bill passes. You can also include 1 to 5 sentences with your artwork.

Extended Deadline: Tuesday, June 26, 2018 at 11:59 p.m. Eastern

For any questions, contact artcontest@ncil.org.

Artwork Contest Rules 2018

Eligibility: Children ages 12 and under are eligible to participate in this contest. Children do not need to be disabled, but must use their artwork to demonstrate how the Disability Integration Act would impact them. The artwork may be no bigger than a standard poster board.  [Read more…]

Does Your CIL Participate in MFP? Do You Have Participants Who Use MFP?

We need your voices on the Hill now!

Money Follows the Person (MFP) officially ended in 2016 and although states have until the end of this year to spend their remaining funds, 7 states have completely run out and many more are dismantling their programs as the end nears. Because of this, we must urgently push this program on the Hill. While we know the power of MFP, Members of Congress do not understand that services, lives, and jobs are being put at risk if MFP is not re-authorized.

Fortunately, there are now bills in both the Senate (S. 2227, introduced by Senators Cantwell and Portman) and the House (H.R. 5306, introduced by Representatives Guthrie and Dingell). Both versions have the exact same text, and the same name: The Empower Care Act.

Please contact your legislators now! Tell them what this program means to you and your consumers. Tell them what it means to your Center for Independent Living (CIL). Ask for them to sign on as co-sponsors. Please copy or contact Community Living Advocate Sheryl Grossman (sheryl@ncil.org) with your correspondence so that she can track our progress.

National Organizing Project Announces Mini-Grants for Emerging ADAPT Groups

The National Organizing Project (NOP), a collaborative between the National Council on Independent Living and ADAPT, with funding from the Ford Foundation, is proud to offer mini-grants to support 10 emerging ADAPT groups (those groups who have not yet met the criteria for becoming a chapter) in their direct organizing efforts. We recognize that seed money is difficult to come by and are proud to be able to ease this burden for 10 groups. All interested groups are encouraged to apply. Applications are due Friday, April 13, 2018.

This will be a competitive process. All applications submitted within the timeframe will be reviewed by a panel of referees. Final determinations are expected to be made by April 20, 2018 with notifications expected by April 27, 2018. If you have questions, concerns, or accommodation requests, please do not hesitate to contact the NOP’s Community Living Advocate, Sheryl Grossman by phone at 202-864-4249 (v) or by email at sheryl@ncil.org.

The Center for Disability Rights Launches the Free Our People Film Contest

The Free Our People Film Contest is one way in which The Center for Disability Rights (CDR) is working to dismantle the systems that keep people locked away in nursing homes.

Thus, CDR is inviting any and all filmmaking enthusiasts to participate in its film contest, in order to garner stories of how the institutional bias has impacted members of every community. The film contest will last two months and will accept both documentary and narrative films. A panel of judges with a range of expertise in film, entertainment and disability advocacy will evaluate the entries and prizes will be awarded. The first, second and third place entries will receive a variety of prizes that include mentoring sessions with accomplished film professionals including Wendy Calhoun (co-executive producer of EMPIRE), $1000 and $500 cash prizes, travel funding, and filmmaking software. Two honorable mention spots will also have their films included in CDR’s upcoming film festival, scheduled for summer of 2018. The contest organizers would like to thank the following sponsors for providing these prizes: Dramatica, Scrivener, Mariner Software, Jungle Software, and The Center for Disability Rights.

The Free Our People Film Contest is exciting because it centers disabled experiences and the perspectives of people with disabilities in the whole filmmaking process,” said last year’s first place winner, Cheryl Green. “It’s such an honor to be recognized for filmmaking that doesn’t cater to non-disabled people. This contest and festival gave me the opportunity to challenge myself as an artist while confronting the hugely complex issues around institutional bias against people with disabilities.” Read more at cdrnys.org.

HCBS Business Acumen Center Website

NASUAD is pleased to announce the HCBS Business Acumen Resource Center’s new website, HCBSBusinessAcumen.org!

HCBS Business Acumen Center LogoThe HCBS Business Acumen Center is a resource center for community-based organizations (CBOs) that serve individuals with disabilities. The resource center provides tools, resources and examples of promising practices that promote the sustainability of disability-focused CBOs. The HCBS Business Acumen Center is designed to help organizations expand their payer portfolio with managed care organizations (MCOs), accountable care organizations (ACOs), healthcare systems, cities, counties, private pay clients and others. Through the HCBS Business Acumen Center, CBOs can receive training, technical assistance, resources and examples of promising practices from CBOs across the country and from a learning collaborative comprised of state departments, disability-focused CBOs and MCOs currently working together to address state-specific opportunities in a changing long-term services and supports delivery system.

The new HCBS Business Acumen Center website serves as a hub of information about the HCBS Business Acumen Center, its initiatives, resources, and how you can get involved.

Visit HCBSBusinessAcumen.org to explore resources, information, and more!

Take Action to Save MFP – New National Days of Action This Week!

Your actions in early February to ask the Senate to #FundMFP made a big impact, and now it is time to once again take action to make the EMPOWER Care Act law!

As a reminder, Money Follows the Person (MFP) expired on September 30, 2016, and states are starting to scale back and end their MFP programs. All programs will be out of money this year! We need your advocacy to get the House and Senate to pass the EMPOWER Care Act to reauthorize and fund MFP!

NCIL logo - National Council on Independent LivingMFP was enacted in 2005 with strong bipartisan support. It was designed to help states transition people with disabilities from institutions to the community, and to assist states in rebalancing their long-term services and supports (LTSS) systems to increase access to home and community-based services. MFP is one of the longest running, most successful Medicaid demonstrations. Since it began, 47 states have participated and over 75,000 disabled people have been liberated from institutions, and Centers for Independent Living (CILs) have played a critical role in that. Congress must work to save and fund MFP, and they need to hear from us! The EMPOWER Care Act has already been introduced by Senators Portman (R-OH) and Cantwell (D-WA) in the Senate (S. 2227), and it’s expected to be introduced in the House by Representatives by Guthrie (R-KY) and Dingell (D-MI) this week. Please urge your Senators and Representative to continue the Money Follows the Person program by supporting the EMPOWER Care Act!

Take Action Now!

  • Participate in Wednesday’s National Call-In Day! Call your Representative and Senators and tell them to support the EMPOWER Care Act and pass it immediately! Call the Capitol Switchboard at (202) 224-3121 or (202) 224-3091 (TTY). Find more information at Wednesday’s Facebook event. RSVP and share widely!
  • Participate in Thursday’s National Social Media Day! Tweet at your Representative and Senators and post on Facebook. Find their Twitter handles and other contact information on Contacting Congress. Make sure to use the hashtag #FundMFP in your posts. You can find more information, including sample Tweets, at Thursday’s Facebook event.
  • Email your members of Congress! You can customize a message to your members of Congress and see the data on responses.
  • Highlight MFP in the press! Arrange press interviews highlighting the stories of folks who were able to move home because of MFP, or individuals who are stuck in institutions and would benefit from MFP’s extension. Media coverage can be key to gaining the support of members of Congress AND the public. If you successfully get the press to cover MFP, please send a link of the coverage to lindsay@ncil.org.