the advocacy monitor

Independent Living News & Policy from the National Council on Independent Living

CIL-NET Presents… A National Teleconference & Webinar: Disability & Diversity Data – How Centers for Independent Living Can Use Data Mining and Community Mapping to Address Diversity

IL-NET Logo - CIL-NET + SILC-NETMost of us care deeply about the diversity of our consumers and ensuring that we are reaching everyone in our communities that could benefit from IL services and programs. But it can be very difficult to determine who you aren’t serving. Data mining and community mapping can paint a more complete picture of your community – where are the people with disabilities, who are you serving and who are you missing. Who has the time and expertise to go through census data though, right?

Join us on January 16th to learn how one CIL has connected with university to get exactly the data they need to improve their outreach and programs. Our presenters will also share how you can take the mystery out of data mining to begin to find and analyze data from common, publicly available sources.

Sign up today! 

Registration Fee: $75.00. Fee is per site (connection) and does not apply per participant; registrants are encouraged to gather as many individuals as desired to participate.

Target Audience:

  • Executive directors, program managers, and staff interested in disability statistics

Learning Objectives

Upon completion of this training, participants will have knowledge and resources that will enable them to:

  • Explain the nature and value of disability statistics relevant to centers’ goals and priorities around issues of diversity and inclusion.
  • Describe how to find and gauge the quality of data sources that can provide centers with relevant local data.
  • Identify ways to analyze data when Centers cannot find the community-level information they are seeking.
  • Identify strategies that broaden centers’ scope and use of data through shared examples that include key areas such as education, employment, transportation, health care access, and housing.

Meet Your Presenters

Susan Dooha is the executive director of the Center for Independence of the Disabled, New York (CIDNY). CIDNY’s goal is to ensure full integration, independence, and equal opportunity for all people with disabilities by removing barriers to the social, economic, cultural, and civic life of the community. In 2017, under Susan’s leadership, CIDNY helped nearly 40,000 people take control of their own lives by offering information, education, and advice to individuals struggling with poverty, housing, barriers to health care coverage and access, nutrition, education, and work. In 2017, CIDNY became the lead plaintiff in litigation seeking an accessible subway system. Susan is the recipient of many honors and identifies as a person with a disability. She obtained her law degree at Yeshiva University, Benjamin N Cardozo School of Law in 1990.

Megan Henly is a researcher at the Institute on Disability at the University of New Hampshire. Her work focuses on the areas of employment, health, and well-being of people with disabilities, including recent publications that examine differences in measures of disability in federal surveys (Disability and Health Journal, forthcoming), opioid misuse among people with disabilities (Disability and Health Journal, 2018), and how economic measures of job quality differ between people with and without disabilities (Journal of Vocational Rehabilitation, forthcoming). As part of her work, she also responds to requests for technical assistance from Independent Living Centers, local government offices, and policy agencies that serve people with disabilities, by locating and computing relevant statistics using federal population data.

Dr. Henly holds an M.S. in survey methodology from the University of Maryland-College Park (2004) and a Ph.D. in sociology from the University of New Hampshire (2015). She has worked in data collection and analysis for a variety of small- and large-scale surveys in nonprofits, the federal government, and academia over the last 18 years.

Stan Holbrook is owner of S. A. Holbrook and Associates, a management consulting firm offering organizational development, diversity and inclusion training, strategic planning, and capacity building training. He is also executive director of the Pennsylvania Council for Independent Living. He was instrumental in developing the Diversity Initiative of the National Council on Independent Living. He served as the chair of the NCIL Diversity Committee and member at large of the NCIL Board for 14 years. He was the vice-chair of the governor-appointed Statewide Independent Living Council and past president of the Pennsylvania Council for Independent Living. Stan has presented at several national conferences on Health Disparities of People with Disabilities and the Influence of Race and Color. He has also served as a presenter on Health Equity and People with Disabilities at several statewide conferences. Stan was a member of the advisory group to the Association of University Centers on Disabilities for development of the Diversity and Inclusion Toolkit (2015-16). He was part of a task force that worked on the Cultural and Linguistic Competence Assessment for Disability Organizations (CLCADO): Assessment and Guide in conjunction with the National Center for Cultural Competence at Georgetown University. He served as a delegate to the White House Commission on Aging in 2005. Stan holds a Master of Public Management degree from Heinz School of Public Policy and Management, Carnegie Mellon University.

Andrew Houtenville is currently an Associate Professor of Economics in the Whittemore School of Business and Economics and the Research Director of the Institute on Disability at the University of New Hampshire. He is extensively involved with disability statistics and employment policy research. He is the Principal Investigator of the Rehabilitation Research and Training Center on Employment Policy and Measurement (EPM-RRTC), as well as, a co-Principal Investigator of the Hunter College Rehabilitation Research and Training Center on Disability Demographics and Statistics (StatsRRTC) and Rehabilitation Research and Training Center on Individual Characteristics and Employment Outcomes (IC-RRTC). He is working with the National Institutes of Health/Clinical Center/Rehabilitation Medicine Division under an Inter-Personnel Agreement (IPA) to evaluate and develop potential recommendations for the reform of the Social Security Administration’s child and adult disability determination processes. He is widely published in the areas of disability statistics and the economic status of people with disabilities.

Dr. Houtenville received his Ph.D. in Economics from the University of New Hampshire in 1997 and was a National Institute on Aging Post-Doctoral Fellow at Syracuse University in 1998/1999. He is the former president of the National Association of Rehabilitation Research and Training Centers.


The IL-NET is a national training and technical assistance project for centers for independent living and statewide independent living councils. The IL-NET is operated by Independent Living Research Utilization (ILRU) in partnership with the National Council on Independent Living (NCIL), the Association of Programs for Rural Independent Living (APRIL), and Utah State University Center for Persons with Disabilities.

The IL-NET is supported by grant numbers 90ILTA0001 and 90ISTA0001 from the U.S. Administration for Community Living, Department of Health and Human Services, Washington, D.C. 20201. Grantees undertaking projects under government sponsorship are encouraged to express freely their findings and conclusions. Points of view or opinions do not, therefore, necessarily represent official Administration for Community Living policy.

Speak Your Mind