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Independent Living News & Policy from the National Council on Independent Living

Invitation to Participate in a Columbia University Survey on Precision Medicine

We are a team of researchers from Columbia University Medical Center in New York. We are conducting an online survey. The topic of the survey is precision medicine research. Precision medicine research looks at a person’s genetics (what they inherit from their families), their environment, and lifestyle. This type of research can help preventing and diagnosing diseases and developing new treatments.

It is important that we learn what people with disabilities think about precision medicine research. We are NOT asking you to volunteer for precision medicine research. We are asking you to take our online Survey because you may have one of the following:

  • Blindness or low vision
  • Deafness or hard of hearing
  • Physical disability
  • Autism
  • Intellectual or developmental disability
  • Learning disability
  • Mental health or psychosocial disability

The Survey asks what you think about precision medicine research, and for some information about you. Your answers are valuable to us and will help researchers design the proposed precision medicine study. You will receive a $25 gift card if you complete the Survey. 

The Survey is in English, Spanish and American Sign Language (ASL). It can be completed with accessibility programs like screen readers. You can also ask another person to help you. It may take up to 25 minutes to finish the Survey. You can also stop at any time.

Your answers will not be linked to your name, and the researchers will not know your identity. If you have questions about the survey, please contact:

Thank you very much for considering our request.


Maya Sabatello, LLB, PhD and Paul S. Appelbaum, MD, Columbia University

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