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Independent Living News & Policy from the National Council on Independent Living

Opportunities for ACTION on Saving the Affordable Care Act

Efforts in Congress are well underway to repeal the Affordable Care Act (ACA) and restructure Medicaid. We’re expecting to see a repeal bill in late March, which will likely include a lot of replacement provisions as well as Medicaid restructuring. There’s still a lot we don’t know, because things keep changing. But we do know that our efforts are making a difference, and that we need to get even louder right now! Please, keep calling, emailing, writing, Tweeting, and meeting with your members of Congress!

For more detailed background information, including the disability-specific pieces of the ACA, our fact sheet on the ACA and Medicaid block grants, and ways to take action, please see our previous alerts, Call to Action: Saving the Affordable Care Act and Fighting Medicaid Block Grants and Action Alert: Save Disability Rights Provisions in the Affordable Care Act.

In addition, there are several upcoming opportunities:

  1. NCIL is working to collect stories from the IL community that we can use to get Congress to understand how their cuts and changes impact real people around the country. Have you benefited from the Affordable Care Act? Did you gain coverage through Medicaid expansion? Did you transition from a nursing home to your community because of Money Follows the Person? Will your independence be jeopardized by Medicaid cuts? These are just a few examples of the types of stories we’re looking for. We’ve been told by our allies on the hill that personal stories are what really make the difference. So please, if you have a story to share, email NCIL’s Policy Analyst, Lindsay Baran, at
  2. NCIL is participating in a coalition of disability advocates and activists called Disability Power for Community Integration. The coalition is putting on a webinar this Friday on Congress’s efforts to repeal the ACA and restructure Medicaid, and how these will impact people with disabilities. If you’re interested in joining, please register online. If you missed the first webinar in January, view the archived materials.
  3. If you haven’t met with your members of Congress yet (or, even if you have), NOW is the time to get some face-to-face. Both the House and the Senate will be in their home districts all next week (February 18-25), and this will be the perfect time to set up a meeting and voice your concerns! We need our members of Congress to hear directly from their constituents how the action of this Congress will hurt us. And while you’re planning your meeting, make sure to check whether your Senators or Representatives have any town halls scheduled on this calendar complied by the Town Hall Project!

With so many programs and services that help our community at risk, now more than ever we need to speak up and be heard!


  1. Dear the U.S. House of Repersentives, Chamber to Congress and Senate with sub committees and appropriations and for the general public- visitors and o The President Of The UNITED STATES OF AMERICA. DONALD TRUMP for consideration to initiate all bills related to revenue in cases with the stricter rules: Please consider my concern on the Congress using the CRA for disapproval resolutions on implementing President DONALD TRUMPS promise to curb federal regulations!

    I Call upon for all listed in the Appripriations “Liaison” for Healtg, Education , Labor,Budget,Senate Appropriations’….

    My general concerns are belonging to the Assiduous hard working disabled citizens’ , I’m putting it in writing to Congress to show I have a positive voice and I can look to the future for being disabled and can advance diversity and inclusion and explore the ways in which we may continue I further those efforts together to remove barriers and enhance supports to ensure all students succeed motivated Research has also established that affects underrepresented students sense of belonging and may, prevent recurring and remedy it’s effects created spaces for students to come together to open dialogue on issues, but there is more the House of Repersentives and Chamber implementing can do to support all in succeeding and to ensure that students from different learning back ground are well position to learn together and from one another with leadership on how to support diverse student populations and address the implicit biases we all carry with us; Allocation resources to provide academic , soicial with all the emotional supports for students and from chronic illness, and any other relevant developmental appropriate within the disability community whom requires reasonable accommodations , intervents referrals on occupational Outreach.

    Congress I am asking how could we as a diversity who needs advocates I behalf working together on every level is making it priority to build ensure that diverse range of voices is given the right opportunity that is me writing to have a voice to learn how Congress uses their intuitive , innovative expirrance to help with a supportive environment , to contribute perspectives on important decisions being made on (LEARNING DISABILITIES ASSOCIATION OF AMERICA ) (LDA), HEALTH LIAISONS, individuals with disabilities Education ACT (IDEA) which about the enforcement of the responded compliance with laws implementing it was discussed with understanding of experience in , commitment to public education for all students extremely exclusive that’s me as a mother of 3 and working for a positive enforcement compliance with implementing the bill abou, Health , Education for the working disabled the document for concern to initiate related revenue in these important meetings where the Congress and the General public and appointed appropriations ‘.

    The common gift of realization from your mind incisive clear thinking is learning the senses hearing, thinkings, viewing prospects, collaborative memory organizational outcomes of thinking of prospects that come into view by knowledge of Education , Visualization on theory from past failure’s, Theses Teams of associates were all there and guided provisions and who’s insights of Liaison and faciities helped in the need to regain the mind self worth and by using my mind senses in which guided this process of mind wellness and the realization, As of Mind Works from mindfulness and using the mind realizations; when your minds chemical imbalances inhabit your senses it’s devastating to see your lake of awareness from not use judgements to annualize perspective and reality clearly which being equipped may allow using mind senses. By being equipped with thinking clearly and with the right mind set and by all rewards, which I received through all the persistent labor; I put in and incisive dedications by myHealth Team, Education,Family,Community , Religon, helped me because I told my mind which is recovering by these Liaisons’ and Teams helped me because I told my mind which is recovering. I truly care about the great future of America’s Great Security for Learning at an exceptional prospect for Justice and Liberty for All!!!!!!
    Thank You Kindly for Hearing my voice about these appropriations’ and for being a Contributor for implementing perspectives of importance. JEAN ALSAMMAN

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